A forum to discuss depression and CIDP.

Members: 36
Latest Activity: Apr 16, 2015

Discussion Forum

knowing when to say...

Started by calaart. Last reply by Crazycolin Sep 7, 2014. 4 Replies

I am so frustrated! I feel like people without this condtion don't really understand what it means to really not have the energy needed to do things and that some of us have such limited energy, we…Continue

Mood Swings Anyone?

Started by Mel. Last reply by Shawn Shawn The Leprechaun Mar 21, 2014. 8 Replies

I was diagnosed with depression before I was diagnosed with this fabulous disease...I haven't changed my anti-depressant at all...but does anyone out there have mood swings coming out of nowhere?  My…Continue

Is it just me or because it is Christmas ?

Started by power of the mind. Last reply by mabes Dec 22, 2013. 4 Replies

Usually I am really good at saying that I have my 15 min pity cry and then get on with the tasks that need doing but lately the depression has hit hard. This year I just cannot seem to do the things…Continue


Started by Shelley66. Last reply by Char68 Sep 30, 2012. 16 Replies

Depressed Yes! It is so hard not being able to do the things I used to do even as simple as making dinner. Things are getting worse everyday for past 2 months. I have swallowing problems now I…Continue

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Comment by rocketsmoke on April 16, 2015 at 10:16am

First being diagnosed with CIDP, now insurance keeps denying. It is beginning to depress me. I had to quite a part time job I had, but struggle daily to keep my full time job. As you all know, something as small as getting out of bed can be a huge struggle. The sensory in my hands seems to0 be getting worse. Dr has yet to prescribe me anything to get through or cope with the depression. Never had to del with the depression in the past, but my insurance company isn't helping matters either.

Comment by kraai on March 4, 2015 at 4:52am

hi all

i have a little girl of 5 years and its difficult to explain to her how i am feeling.

full of pain and depressed i am 36 years old and it still effects me terrribly. thank you for the positive feedback and knowing that you live with this disease and is still smiling inspires me to be more positive and to believe someday everything will be calm inside me.

Comment by Mel on April 4, 2013 at 4:12am

Thank you for all of your thoughts and helps tremendously. I am 36, and I have an 8 yr old boy and an 11 yr old boy, and they are what keeps me getting out of bed each day.  Plus, I am now seeing my counselor weekly now.  Thank you again for your support!!

Comment by springmang on April 1, 2013 at 9:59am

Yes it is natural for our kids to see us in pain, but depression doesn't have to go with it. Fortunately my youngest is 30 yrs. old and understands what pain is, if they were younger, I may have a problem. Gary

Comment by mabes on April 1, 2013 at 8:43am


I think it's natural for our kids to see us depressed and in pain because they may be there themselves at some point.  We are their role models...who better to inspire us to cope with depression and pain.  We can teach them that suffering is  temporary.  Our love for our kids is eternal.  You probably fight through the pain to be a better mom for them every day.  That's something. 

Comment by Mel on February 12, 2013 at 8:00am

How do all of the parents out there with young children handle days with depression and pain???

Comment by jan on August 25, 2012 at 3:02pm

hi, i know what you are on about Audrey i have had c.i.d.p. for18yrs an even the smallest task seems hard to do,i used to love to clean my windows now my daughter as to do them,i took up spiritulist an getting out in the garden to listen to the birds i try to help in the garden,i love to go to wales with my hubby an look at the birds an i love the water but it draws me so i have to look from a distance,i used to love walking an going on hikes on the mountains cant do that any more,hope you are as well as can jan.

Comment by springmang on June 1, 2012 at 5:26am

Depression and anxiety seem to be my two best friends now, unfortunately.

Comment by Audrey on May 20, 2012 at 10:23pm

I admit it, I have had depression. There were times I felt like a prisoner in my own body, left with only my thoughts that ran rapidly through my mind. All the "Would Haves, Should Haves, Could Haves, and What ifs" tortured me. I was so saddened when I lost my Independence. I went from brushing my teeth, and washing my own hair, to having someone else do it for me. The song "One" by Metallica described how I felt when came down with Guillain-Barre, and then was diagnosed with CIDP. 

I think the most frustrating part about the whole thing was my speech was slow and jumbled. Although I could think what I wanted to say, I could not form the words properly. My doctor said that was because my nerves were severed by my white blood cells attacking my body when I had GBS which caused the transmission from my brain to my lips to not work. 

People around me acted like I was a I couldn't understand/comprehend them. But I heard everything... which hurt tremendously. 

But have no fear. I have been living with CIDP now for almost 11 years, and have learned to embrace life with a new outlook. I figured I can't change what is, so I might as well except my new body and its limitations. 

I have days where I am "Free To Be Me". Those consist of high energy, very little weakness, no pain in my feet, my reflexes working, being able to pick things up without my hands looking all weird, and I can even run up my stairs. Woo-hoo!

Prior to CIDP, I was running around like a chicken with my head cut off. I was always on the go. So now when the "Lay Low Days" come, I take that time to reflect, and enjoy life. I found that photography works for me. It allows me to capture the beauty of the world I live in, that I normally would have missed if I never had CIDP.

Having CIDP has been a wonderful spiritual journey for me. I have been given time to soul search about the important things in life that really matter.  When I have, "Lay Low Days" I find comfort in my belief that God's is telling me it's time to slow down again …to stop and smell the roses. If it weren't for CIDP, I would not be here, on this website, sharing my story with you. And that my friends, is why I feel that having CIDP has been a blessing in disguise.

Comment by 2bt2 on February 21, 2012 at 4:34am

when I found this site I ws thrilled to see a depression group.  But then, I just didn't feel like clicking the link to join.  Maybe that's depression........


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