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I am happy to say I finally got approval from my insurance company to do home weekend infusions of IVIG.
I had a four day 2gram course in early January which I responded to miraculously well. Second two day outpatient infusion at local…Continue
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
I wanted to put some of my history together to introduce myself. Today I was motivated to write something now that I have joined 2 CIDP groups. so here goes.....I am new here and am trying to figure out if my symptoms fit CIDP. I have spent the last…Continue
HiThanks for all the emailsI'm getting ready for my first infusion !I'm 61 in good health except for cidp!It started about 5 years ago , when I noticed I had a problem trippingCause of toe on my left foot catching.I have had many problems with my…Continue
I'm very recently diagnosed with CIDP. My bilateral leg weakness is deteriorating quickly, and now my hands are being affected. I went into hospital 2 weeks ago for plasmapherisis, but so far have seen no improvement. I'm getting a bit desperate. I…Continue
I really want to know what I'm going to experience when taking this drug for an extended period of time. I was just diagnosed last month and have now been taking 100mg of Prednisone for about 3 weeks. I don't think I have noticed any side effects…Continue
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This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!