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Blog Posts

New member

Posted by Mark on August 19, 2014 at 12:02pm 1 Comment

My name is Mark I am a 50 year old man with a recent diagnosis with CIDP. I have had two treatments of IVIG one for three days mid June and one for five days at  the end of July. I am currently in a acute rehab in a world renown hospital. I am…

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ClinicalTrials.gov Studies

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

i have something in my " sore"

Started by moamen in General. Last reply by estaban on Saturday. 1 Reply

its like sore throat feelings but with no high temperaturei dont  know , is it from cidp ?Continue

Aggresive Actions for CIDP

Started by Country Girl in General. Last reply by mdolich yesterday. 7 Replies

I was diagnosed in May 2014 and have been doing IVIG infusions for 2 months and don't see much improvement so I need more info or encouragement. I am afraid of steroids due to side effects, has anyone used plant steroids?Has anyone used: …Continue

Do I Actually have CIDP?

Started by BigMike in General. Last reply by estaban on Sunday. 3 Replies

Alright. I had both my knees replaced about a year and a half ago. Came out of it with flying colors (if there can be any such thing). Six months later I noticed that my lower calf muscle on both legs was very stiff and my PT and started working on…Continue

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Latest Activity


Moderator
mdolich left a comment for Norbert N Steiner
"It shouldn't limit you to write, hmmm..... Maybe Rose or Dancermom could maybe tell you more."
2 hours ago

Moderator
mdolich left a comment for angie
"Welcome to our family Angie. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
2 hours ago

Moderator
mdolich left a comment for Jcole
"Welcome to our family Jcole. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
2 hours ago

Moderator
mdolich left a comment for Norbert N Steiner
"Welcome to our family Norbert. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
2 hours ago
Norbert N Steiner left a comment for Norbert N Steiner
"Why does this medium limit me to two sentences?"
4 hours ago
Norbert N Steiner posted a status
"Hi, I am new to CIDP - not to its symptoms. It started at age 11 and at age 67 I am not diagnosed yet."
4 hours ago

Moderator
dancermom left a comment for Norbert N Steiner
"Welcome, Norbert, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
8 hours ago
Profile IconNorbert N Steiner, Jcole and angie joined Living With CIDP - Online Support Group
8 hours ago

This Week On Living With CIDP 

1 Aggresive Actions for CIDP

Aggresive Actions for CIDP

Posted by Country Girl on August 15, 2014

2 Chiropractor help with CIDP?

Chiropractor help with CIDP?

Added by Roy on August 15, 2014

3 What constitutes a relapse?

What constitutes a relapse?

Posted by Paul on July 25, 2014

4 New member

New member

Added by Mark on August 19, 2014

5 The Good News and the Not So Good News

The Good News and the Not So Good News

Added by Bobby on August 16, 2014

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