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Blog Posts

High Chloresterol and CIDP.

Posted by akamalaccas on July 27, 2014 at 11:59am 2 Comments

I though I'd mention my chloresterol levels hit an alarming high about 3 years ago.The primary care doctor,GP,really did not want to give me statins due to the potential response which in some patients had been in other neurological conditions,…


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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.


Tight band around ribcage

Started by dalaxna31 in General. Last reply by Robert Martin 9 hours ago. 7 Replies

Hi I am starting this discussion in hopes that someone has had a similar issue.  I have had a tight band around my ribcage that has been there for 3 months or so.  None of my doctors have any thought to what it could be, but it is extremely…Continue


Started by Robert Martin in General yesterday. 0 Replies

I am looking to meet up with people from the Fresno / Clovis Ca area.


Started by bteeter in General. Last reply by dancermom on Monday. 1 Reply

Has anyone been told they have an aneurism of an artery after having an MRI?  My last MRI of the lumbar spine showed a dilation of the common left iliac artery.(aneurism)  It is still small at almost 2cm, but am curious as to what the doctors had to…Continue

The Shakes

Started by Catherine H in General. Last reply by Catherine H on Monday. 6 Replies

Does anyone suffer from the shakes?  My daughter has CIDP which affects her upper body - shoulders, shoulder blades, arms and hands.  She has recently developed the shakes in her hands particularly after exercise (soccer).  Could it be the exercise…Continue

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Latest Activity

dancermom and moamen are now friends
1 hour ago

dancermom left a comment for moamen
"I will try to address your questions more fully when I get home, but can tell you that there is currently no treatment for Charcot Marie tooth. It sounds like genetic testing may be a good idea for your family."
1 hour ago
neta left a comment for eldad
"Hi there Eldad. Just saw this now. I do not have this particular disorder. To get the IVIG in Israel, you have to go to your Israeli dr  (a neurologist) and get a letter and "invitation" and then go to you "Kuppat hoilm" and…"
1 hour ago
moamen left a comment for dancermom
"dear dancer mom , is there a way to regenrate nerves to reconnect with muscels to reback nerve motors. i really suspect that my father had mct" marie charcot tooth "- are stemcells benefit? i have 2 daughter one called judy 6 months years…"
3 hours ago

dancermom left a comment for moamen
"Welcome, moamen, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. About whether CIDP is hereditary, here is some information for you: No underlying genetic defect (mutation) has been associated…"
5 hours ago
Profile Iconmoamen and eldad joined Living With CIDP - Online Support Group
5 hours ago
Robert Martin replied to dalaxna31's discussion Tight band around ribcage
"I have this my ribs and back feel as if they are being crushed. I get infusions every week. They don't help this . I have to push my meds up pretty high before getting any relief."
9 hours ago
Sunshine replied to dalaxna31's discussion Tight band around ribcage
"Hi.  I was diagnosed with MS in 2010 and CIDP a few months ago.   The banding pain that you are describing is what we MSers call the MS hug.  It's rather uncomfortable and I usually take Valium when mine kicks in which helps…"
13 hours ago

Try search feature before posting a question

This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!


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