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Never give up.

Posted by Armando Abrero on April 20, 2014 at 3:08am 0 Comments

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Climbing stairs

Started by AMA1956 in General 1 hour ago. 0 Replies

How difficult is it for you guys to climb stairs. My mom needs someone behind her and Infront of her to climb the stairs. Also if it was bad initially did you feel that it got better with time?

New to CIDP maybe?

Started by Scoop in General. Last reply by Scoop 1 hour ago. 2 Replies

I am new to this group and looking for information, knowledge, support and direction if that is possible.My history; I started have issues with the right side of my face, shoulder, arm and hand in the fall of 2004. I was diagnosed with degenerative…Continue

CIDP metaphor for the fun of it

Started by estaban in General. Last reply by mabes 6 hours ago. 1 Reply

I have an old house wherein the electrical wring was put in incorrectly (I have had it fixed). My living room and two bedrooms face the patio. All three rooms have sliding glass doors and separate electrical switches to control the outdoor/patio…Continue

Are green super foods good for people with cidp?

Started by Martha in General 23 hours ago. 0 Replies

Does anyone know if things like wheatgrass, spirulina, chlorella and other "green superfoods" are good for people with cidp? I've tried them off and on for the last month and they seem to give me more energy. But am concerned as they have immune…Continue

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Latest Activity

Scoop replied to Scoop's discussion New to CIDP maybe?
"The doctor at Shand’s said my spinal fluid test came back as normal. He said the virus was gone and that it would take awhile for the damage to heal. The neurologist (1st) at USF said that my protein was high but my white blood…"
1 hour ago
AMA1956 posted a discussion

Climbing stairs

How difficult is it for you guys to climb stairs. My mom needs someone behind her and Infront of her to climb the stairs. Also if it was bad initially did you feel that it got better with time?
1 hour ago
AMA1956 replied to estaban's discussion What caused CIDP in you?
"Recurring allergic reactions is what I suspect caused it in my mom. She's severely allergic to hair dye but wouldn't give it up."
1 hour ago
AMA1956 replied to Scoop's discussion New to CIDP maybe?
"What exactly did they find in your spinal tap? How did they conclude a viral infection? I am a physician and might be of a lil bit of help. Even though we are barely taught much about cidp I've learnt a lot since my mom was diagnosed."
2 hours ago
Scoop posted a discussion

New to CIDP maybe?

I am new to this group and looking for information, knowledge, support and direction if that is possible.My history; I started have issues with the right side of my face, shoulder, arm and hand in the fall of 2004. I was diagnosed with degenerative…See More
4 hours ago
donna replied to estaban's discussion What caused CIDP in you?
"I had a tetanus shot In Jan or Feb of 2005 and about a month later could not do my balancing exercises but thought I was just getting out of shape.  Then, throughout the summer, I felt strange vibrations, which I at times thought was my cell…"
6 hours ago

Moderator
Scott Orn left a comment for Scoop
"Giant welcome Scoop! One tip, if you have specific questions it's best to start a New Discussion and ask away. that makes it easier for others to find and respond to your questions."
6 hours ago

Moderator
mdolich left a comment for Scoop
"Welcome to our family Scoop. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
6 hours ago

Try search feature before posting a question

This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!

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Myositis - Online Support Group

New member says:

"Thank you for the welcome! I haven’t been given a formal diagnosis but just found I have an elevated Jo 1 antibody so I guess I have some form go myositis. I’m going to Mayo in May for further evaluation!”

Myositis - Online Support Group

Myositis - Online Support Group

New member says:

Thanks, looking forward to learning more about this condition and how people cope with it.”

Myositis - Online Support Group            

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