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Blog Posts

No Longer any Need to "LIVE" with CIDP

Posted by Hdanhakl on October 11, 2014 at 11:18am 0 Comments

Again, PLEASE call/email Dr.Richard Burt, Chairman of Immunology Dept of Northwestern University Feinberg Med Center in Chicago. He has been curing (my word, not his) CIDP for several years. My son and 2 others I know have been years with no more…

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Chronic Low Body Temp? Hypothermia with CIDP?

Started by bonnie in General. Last reply by bonnie 13 hours ago. 2 Replies

Hello Everyone!Just joined this site and am so happy to have found it.  My husband was diagnosed with CIDP in 2012.  I am wondering if anyone has ever had issues with a low body temperature (94'/95'), chills, shaking ?  He does have an appointment…Continue

Great Exercise to Strenghten Hips and Hamstrings

Started by mabes in General. Last reply by dancermom yesterday. 2 Replies

Quite by accident I found an exercise that strengthened my lower body.  We are remodeling my house and the path to my closet is blocked.  I have had to walk on my knees across the bed to the closet.  After about a week, I noticed my hips and…Continue

just curious

Started by spellbound in General. Last reply by spellbound 13 hours ago. 7 Replies

Ok my first attempt st a post, it won't be longand rambling. Just curious, how can one be completely numb and at the same time feel so much pain? I know my body l/brain is confused but really?Continue

Weird symptoms

Started by Sunshine in General. Last reply by Sunshine yesterday. 2 Replies

For the past 10-15 years, I've seemed to own the market on "weird" symptoms.  It starts out that some weird symptom occurs, I tell myself I'm crazy after scouring the internet for an article with that symptom in it, and then push it to the back of…Continue

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Latest Activity

Uncle Bill replied to estaban's discussion Good days and REALLY good days...
"I have CIDP, and also thyroid problems.  When I asked my endocrinologist what caused the thyroid problems, she said, "Well, we don't really know for sure, but the general opinion is that it is an autoimmune issue somehow." …"
2 hours ago
Geepster replied to estaban's discussion Good days and REALLY good days...
"I have CIDP, Epilepsy, and migraine. My daughter has migraine and double sleep, my sister has MS but the docs say it's all unrelated. I think they don't know or won't take the time to find the connection that seems obvious to me.…"
2 hours ago
spellbound replied to spellbound's discussion just curious
"Neuroboy, I like that, says they'll do IV fluids before and after and they'll be coming to my home,, I drink so much water as it is I'm surprised I don'have gills, guess the prednisone or gabapentin bring that on. Thanks."
13 hours ago
bonnie replied to bonnie's discussion Chronic Low Body Temp? Hypothermia with CIDP?
"Thank you estaban.  Yes, I am aware and concerned about the consequences of this ongoing problem but trying to convince my husband that we need to see the doc sooner was hopeless .  He has been through so much…"
13 hours ago
estaban replied to spellbound's discussion just curious
"Take maximum benedryl dosage (I get 50 mg) half hour before infusion and I take 650 mg Tylenol (12 hour type) 30 minutes before infusion. Take infusion at slowest rate possible (I once went 6 hours of infusion because of a reoccurring bladder…"
13 hours ago
estaban replied to bonnie's discussion Chronic Low Body Temp? Hypothermia with CIDP?
"For the body to work/cook it's chemistry, brew the hormonal soup; the temperature needs to be in the normal range most or the time. Chronic low temperature? Seeing a PCP next week may cause a lot of cellular damage or worse. Review human…"
14 hours ago
spellbound and estaban are now friends
14 hours ago
spellbound replied to spellbound's discussion just curious
"I'm starting IVIG as soon as insurance auth goes through, nervous about side effects, any input there would be greatly appreciated."
14 hours ago

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