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February 2012 Community Newsletter
Posted by Ben Munoz on February 22, 2012 at 11:26pm 0 Comments 0 Likes
Dear Friends and Family of LivingwithCIDP,
As you well know, living with CIDP can be very challenging not only for you but to your families as well. This organization was built with a…
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GBS/CIDP Foundation International invites CIDP patients only to a special meeting w/Johns Hopkins Nuerologist
Posted by mabes on February 14, 2012 at 11:59am 0 Comments 1 Like
Topic: Updates on CIDP help sort out your diagnosis and treatment
Speaker: Dr. David Cornblath Prof of Neur &Neursurgery Johns Hopkins Univ Member GBS/CIDP Advisory Board
SATURDAY, MARCH 3, SHERATON AT WESTPORT, ST.…
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Stopping Trreatments?
Started by uncomfortably numb in General. Last reply by uncomfortably numb 6 hours ago. 12 Replies 0 Likes
I spoke with my neruo 2 weeks ago after going through several rounds of IVIG over the past year with side effects that he did not feel out weighed the benefits now, and I agree, he wants to stop those. In the beginnig, the treatments allowed me to…Continue
Remedies for Walking and Running Difficulties
Started by JonJ in General. Last reply by Joe D 16 hours ago. 3 Replies 0 Likes
I understand that a large number of you have difficulties with running and walking. About six years ago, I found it increasingly difficult to find shoes that I could comfortably walk in. I have a problem called foot drop which caused my feet to slap…Continue
Alternative medicines
Started by derek in General yesterday. 0 Replies 0 Likes
Hi All, my question today is if anyone has used Phospholipid exchange and if so did it have a positive outcome.Be blessed today.Continue
Bothersome result of IVIG?
Started by Jen in General. Last reply by Jen yesterday. 8 Replies 0 Likes
About a month after the first round of IVIG in November, I was plagued by a very itchy rash. The general consensus from med people was that the treatment had nothing to do with it. However, am into the 2nd day of IVIG and it has already begun. So…Continue
Latest Activity
Top Discussions
| 1 |
Need all my friends to answer--when are total effects of IVIg felt?Posted by Doggymama on January 28, 2012 |
| 2 |
Beginning symptoms of CIDPPosted by jh on February 15, 2012 |
| 3 |
Stopping Trreatments?Posted by uncomfortably numb on February 20, 2012 |
| 4 |
NEW SENSATIONS CAN ANYONE RELATE TO THISPosted by Mary on February 7, 2012 |
| 5 |
BreathingPosted by Joe D on February 5, 2012 |
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