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If your family has been affected by CIDP, consider Living With CIDP your second home.
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Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
I am new to this group and looking for information, knowledge, support and direction if that is possible.My history; I started have issues with the right side of my face, shoulder, arm and hand in the fall of 2004. I was diagnosed with degenerative…Continue
I have an old house wherein the electrical wring was put in incorrectly (I have had it fixed). My living room and two bedrooms face the patio. All three rooms have sliding glass doors and separate electrical switches to control the outdoor/patio…Continue
Does anyone know if things like wheatgrass, spirulina, chlorella and other "green superfoods" are good for people with cidp? I've tried them off and on for the last month and they seem to give me more energy. But am concerned as they have immune…Continue
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New member says:
"Thank you for the welcome! I haven’t been given a formal diagnosis but just found I have an elevated Jo 1 antibody so I guess I have some form go myositis. I’m going to Mayo in May for further evaluation!”
Myositis - Online Support Group
New member says:
“Thanks, looking forward to learning more about this condition and how people cope with it.”