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I just read the post from someone rejected by Dr. Burt's study. My son was accepted, but has so far been rejected by my insurance company to fund his treatment. My son and I got face to face with the appeals committee on Wednesday at 8:30 a.m.…Continue
Ben Munoz & Ben's Friends were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.
"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
My Neuro wants me to have this test. My insurance will not cover the cost which is 2,700. This test is not done at specific labs or a person will come to my house for the draw. I am flat in bed with pain. I can not afford the test and do not…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Posted by Adela on March 6, 2014
Posted by crlyn324 on March 6, 2014
Posted by Muppet on March 10, 2014
Posted by GonnaGetBetter on March 3, 2014
Posted by Cookie on January 8, 2014
This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!