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Blog Posts

I lost all reflexes in my arms and legs since I was stricken with CIDP in March 2013  

Posted by omexpert on July 23, 2014 at 8:07pm 0 Comments

I lost all reflexes in my arms and legs since I was stricken with CIDP in March 2013

 

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Swelling and pain in wrists

Started by Jan in General 8 hours ago. 0 Replies

I have just found your group on the web. After what I thought was a pulled muscle in my back last August and rapid decline in health, I was diagnosed with CIDP in January. By this time I had seen 5 doctors and no one was sure what was going on. I…Continue

DVT from IVIG

Started by Cookie in General. Last reply by Cookie yesterday. 2 Replies

Hi All,I was just diagnosed this past week with a deep vein thrombosis in my left calf. Since I have no other risk factors, the vascular surgeon has determined that the cause is most likely the IVIG, since blood clots are one of the common risks of…Continue

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Started by Scott Orn in General. Last reply by dancermom 11 hours ago. 1 Reply

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient organization. It's incredible to be recognized by…Continue

Diarrhea

Started by mikemc in General. Last reply by Robert Martin 5 hours ago. 6 Replies

I am relatively new to CIDP with a diagnosis in Dec 2013.  Started IVIG in early Dec 2013 and have had monthly infusions since then.  I think that I get 35 mg (or is it 35 ml) for 5 days every month of Gamunex.   The first bout occurred…Continue

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Latest Activity

Robert Martin replied to mikemc's discussion Diarrhea
"I haven't had this problem and I have an infusion every week. Headaches only occurred for me if I wasn't hydrated or if the rate was to fast."
5 hours ago
Jan posted a discussion

Swelling and pain in wrists

I have just found your group on the web. After what I thought was a pulled muscle in my back last August and rapid decline in health, I was diagnosed with CIDP in January. By this time I had seen 5 doctors and no one was sure what was going on. I…See More
8 hours ago
omexpert posted a blog post

I lost all reflexes in my arms and legs since I was stricken with CIDP in March 2013  

I lost all reflexes in my arms and legs since I was stricken with CIDP in March 2013 See More
8 hours ago
mistylynn81 replied to mistylynn81's discussion realizing I'm not as strong as I was
"t sI had physical therapy for a long time thats how I got better from the gbs.. I just started pt again. I got 2 weeks til my specialist appointment"
9 hours ago
trueblue06 replied to mikemc's discussion Diarrhea
"Occasionally this happens to me. I notice a strange odour also. I am assuming that the Ivig is the culprit. I often have to resort to medication to stop it. I think the strong concentration of antibodies tends to mess up your system. Keep your water…"
10 hours ago
trueblue06 liked mikemc's discussion Diarrhea
10 hours ago
akamalaccas replied to mikemc's discussion Diarrhea
"No,not in 7 years."
11 hours ago
Bobby replied to mikemc's discussion Diarrhea
"I haven't had that issue, I get migraine headaches which last 2-3 days after my infusions."
11 hours ago

This Week On Living With CIDP 

1 Wheelchair use

Wheelchair use

Posted by Cair on July 19, 2014

2 Sevella

Sevella

Posted by Not a kid on May 14, 2014

3 My road to recovery with HSCT Stem Cell Transplant

My road to recovery with HSCT Stem Cell Transplant

Added by Heather R on May 31, 2014

4 I am staying of to see how worse can be.

I am staying of to see how worse can be.

Posted by Zacharias Garyfalou on July 20, 2014

5 IMG_0657[1]

IMG_0657[1]

Added by akashide on July 19, 2014

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