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Blog Posts

Third IVIG course; Inbetween maintenance?

Posted by Md_CIDP on April 18, 2015 at 6:34am 0 Comments

I am happy to say I finally got approval from my insurance company to do home weekend infusions of IVIG.

I had a four day 2gram course in early January which I responded to miraculously well.   Second two day outpatient infusion at local…

Continue

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Hello from someone new to thinking about CIDP

Started by Wanderer in New Member Introductions and Personal Stories. Last reply by Md_CIDP yesterday. 3 Replies

I wanted to put some of my history together to introduce myself. Today I was motivated to write something now that I have joined 2 CIDP groups. so here goes.....I am new here and am trying to figure out if my symptoms fit CIDP. I have spent the last…Continue

Tags: CIDP, MCTD, EBV, WNV, MG

First time

Started by Paul T in General. Last reply by Sue Jones yesterday. 5 Replies

HiThanks for all the emailsI'm getting ready for my first infusion !I'm 61 in good health except for cidp!It started about 5 years ago , when I noticed I had a problem trippingCause of toe on my left foot catching.I have had many problems with my…Continue

Best CIDP specialists in US ?

Started by Minagish in General. Last reply by tperri on Thursday. 4 Replies

I'm very recently diagnosed with CIDP. My bilateral leg weakness is deteriorating quickly, and now my hands are being affected. I went into hospital 2 weeks ago for plasmapherisis, but so far have seen no improvement. I'm getting a bit desperate. I…Continue

Tags: plasmapherisis, specialists, CIDP

Prednisone

Started by VB Living in General. Last reply by springmang yesterday. 6 Replies

I really want to know what I'm going to experience when taking this drug for an extended period of time.  I was just diagnosed last month and have now been taking 100mg of Prednisone for about 3 weeks.  I don't think I have noticed any side effects…Continue

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Latest Activity

Michael in Chicago and DazedandConfused are now friends
8 minutes ago

Moderator
DazedandConfused left a comment for Michael in Chicago
"Michael, Welcome to our supportive CIDP community! We hope you are doing well with your treatments and that the CIDP symptoms have begun to subside, even if just a bit. Here, you will find a worldwide network of other CIDP patients along with some…"
21 hours ago
Profile IconMichael in Chicago and kabube joined Living With CIDP - Online Support Group
21 hours ago
Susan replied to Robert Martin 's discussion Muscle deterioration
"What is "doing the alphabet with arms and legs" ? What is "doing the alphabet with arms and legs" ? "
yesterday

Moderator
mdolich left a comment for kabube
"Welcome to our family Kabube. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
yesterday
Md_CIDP replied to Wanderer's discussion Hello from someone new to thinking about CIDP
"As long as IVIG  works, go for it.   Doesn't really matter what you are named.  Only matters what makes you better. Of course, your insurance company must approve it."
yesterday
Md_CIDP posted a blog post

Third IVIG course; Inbetween maintenance?

I am happy to say I finally got approval from my insurance company to do home weekend infusions of IVIG.I had a four day 2gram course in early January which I responded to miraculously well.   Second two day outpatient infusion at local cancer…See More
yesterday
springmang replied to LD Williams's discussion angry, fed up
"I know what you're going through, both my neuro and my therapist wanted me to get a walker, but I said there's no flippin' way, I'll stick with my cane, thank you very much. Just remember it comes and goes, but talk with your…"
yesterday

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