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Blog Posts

No Longer any Need to "LIVE" with CIDP

Posted by Hdanhakl on October 11, 2014 at 11:18am 0 Comments

Again, PLEASE call/email Dr.Richard Burt, Chairman of Immunology Dept of Northwestern University Feinberg Med Center in Chicago. He has been curing (my word, not his) CIDP for several years. My son and 2 others I know have been years with no more…

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Good days and REALLY good days...

Started by estaban in General 11 hours ago. 0 Replies

Months ago I had the lumbar puncture... ouch!. Cancer was found in the form of MGUS (an abnormal monoclonal gammpathy). For months I hovered on the Multiple Myeloma/Waldenstrom's Macrogammagloblomenia precipice... and then a month ago came the…Continue

Tags: spinal, cancer-free, happy, good

pp vs cell cept vs IVIG

Started by Ethel in General 13 hours ago. 0 Replies

  . Because of my age, I have made a decision that the treatment I have is the best for me. The information that I received from everyone about plasmphersis  and cell cept vs  ivig  helped me make that decision.. Medicare has  been paying for IVIG…Continue

heat and pain

Started by Paula Karem in General. Last reply by Robert Martin yesterday. 1 Reply

why does a hot (or even a warm) bath make my feet and legs reply hurt?Continue

Stress: some is good for us. Too much is detrimental. why? How? Can we learn to control?

Started by Geepster in General. Last reply by Geepster 17 hours ago. 12 Replies

Stress is basically a condition in which we carry out our pre-wired response to "painful" stimuli --- the fight or flight syndrome. This is all well and good if the stimuli, seen as "bad", is fought and removed but what if the world has changed so…Continue

Tags: CIDP

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Latest Activity

estaban posted a discussion

Good days and REALLY good days...

Months ago I had the lumbar puncture... ouch!. Cancer was found in the form of MGUS (an abnormal monoclonal gammpathy). For months I hovered on the Multiple Myeloma/Waldenstrom's Macrogammagloblomenia precipice... and then a month ago came the…See More
11 hours ago
Ethel posted a discussion

pp vs cell cept vs IVIG

  . Because of my age, I have made a decision that the treatment I have is the best for me. The information that I received from everyone about plasmphersis  and cell cept vs  ivig  helped me make that decision.. Medicare has  been paying for IVIG…See More
13 hours ago
spellbound posted a status
"Is there anywhere to post a link, I'm trying to raise donations to help with treatments and loss of work, this is all very new to me..."
13 hours ago
Gert replied to Paula Karem's discussion balance and falling
"Yes. Try to get exercise. I have an exercise bicycle and I try to ride 4 kms each day.in the beginning it made the pain in my feet worse but after one week the pain slowly become less. I,m able to walk the whole day, it's only in the afternoons…"
13 hours ago
spellbound left a comment for Scott Orn
"Thanks, good to be here."
14 hours ago

Moderator
Scott Orn left a comment for Ambo
"Hi Ambo -  Huge welcome to the community! This is a great place! One tip, if you have specific questions it's best to start a New Discussion and ask away. that makes it easier for others to find and respond to your questions."
15 hours ago
Profile IconAmbo and spellbound joined Living With CIDP - Online Support Group
15 hours ago
Geepster replied to Geepster's discussion Stress: some is good for us. Too much is detrimental. why? How? Can we learn to control?
"The vastness of the outdoors does have a way of putting our temporary problems in perspective! To your other point about the prednisone related? "internal"  stress that you feel: that anxious feeling has been associated with ig…"
17 hours ago

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This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!

 
 
 

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