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Blog Posts

Losing power in feet and hands

Posted by Maureen on November 21, 2014 at 2:43pm 0 Comments

I have been losing muscle strength for years now.  I am 70 years old and live alone so I have to manage myself.  Over the years I was diagnosed with CRPS but MRI's show I have damaged tendons and muscles in my shoulders and knees when before I…

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Orthotic devices?

Started by Melisa H in General. Last reply by Melisa H yesterday. 11 Replies

Hi!I was wondering if anyone would be able to share any experiences with me?My mum has CIDP and has a ankle-foot orthoses (splint) but does not use it. I was wondering if this is common and if you do wear an orthoses what type (insole, splints,…Continue

Tags: CIDP, Orthoses

how long?

Started by yomtov in General. Last reply by angelicangel 6 hours ago. 11 Replies

they all say it takes time to go into remission my wife has not stood for over 7 months except for a short period of slight arm and leg movement she has been paralyzed from the neck down for over 7 months went off the resperater 4 months ago and 2…Continue

WANTED: Info onVariations of IVIg dosages, durations, frequency , and additional drugs

Started by Geepster in General. Last reply by Geepster yesterday. 15 Replies

I lost my entire discussion when I previewed it! Bummer :-(I missed my second of three infusions this week when my neuro cancelled it because I had a few cramps unrelated to the IVIg. I've been trying to get him to add another infusion. He seems…Continue

Members in the Cape Town, South Africa

Started by seadog in General. Last reply by Rfisher7381 Nov 15. 2 Replies

Hi! Everyone out there.I am a young 77 years of age but only a one day member. I have just been diagnosed with CIDP and most of the members seem to be in the US of A. I am wondering if there are any Capetonians around? If so perhaps we can get in…Continue

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Latest Activity


Moderator
Scott Orn left a comment for Elbie
"Hi Elbie! Huge welcome to the community! This is a great place! One tip, if you have specific questions it's best to start a New Discussion and ask away. that makes it easier for others to find and respond to your questions."
6 hours ago

Moderator
Scott Orn left a comment for Stacey M.
"Hi Stacey - Huge welcome to the community! This is a great place! One tip, if you have specific questions it's best to start a New Discussion and ask away. that makes it easier for others to find and respond to your questions."
6 hours ago

Moderator
Scott Orn left a comment for L.D
"Hi LD -  Huge welcome to the community! This is a great place! One tip, if you have specific questions it's best to start a New Discussion and ask away. that makes it easier for others to find and respond to your questions."
6 hours ago
angelicangel replied to yomtov's discussion how long?
"When I got CIDP in 1985 I walked and stumb"
6 hours ago

Moderator
mdolich left a comment for Elbie
"Welcome to our family Elbie. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
11 hours ago
Profile IconElbie, Stacey M. and L.D joined Living With CIDP - Online Support Group
11 hours ago

Moderator
mdolich liked Melisa H's discussion Orthotic devices?
11 hours ago

Moderator
mdolich left a comment for L.D
"Welcome to our family L.D. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
11 hours ago

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This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!

 
 
 

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