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Uncle Bill

What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. CIDP is also sometimes called chronic relapsing polyneuropathy, caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both sexes, CIDP is more common in young adults and in men. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre Syndrome, and it is considered the chronic counterpart of that acute disease.



Started by PeregrineFalcon in Symptoms 7 hours ago. 0 Replies

Hi. New to this group. Thank you for sharing your struggles and successes. I am wondering why my insomnia is so bad the couple days after IVIg. My body is very tired and not well but won't rest. Any thoughts? I am on plenty of meds for sleep so it…Continue

Tags: Insomnia

Spoon Theory and When to make Life changes

Started by txangel922 in General. Last reply by txangel922 10 hours ago. 2 Replies

I went and read the Spoon Theory after seeing someone on here recommend it I must say it's very helpful in giving a visual for others of our daily struggles. If you get a chance you should google it. I read it to my husband and he agreed it did help…Continue

IVIg results - not sure its helping

Started by Making lemonade in General. Last reply by Danne yesterday. 2 Replies

Finished my 5th month of 6 , monthly loading doses.  I do 35 gm per day for 5 consecutive days, plus solu-medrol with each infusion. I am concerned as the last 2 months my symptoms seem to have worsened. The fatigue throughout my legs has increased,…Continue

Autoimmune Disease + Microbiome

Started by David in Complementary Therapies on Sunday. 0 Replies

I’ve been searching through the archives and I don’t see any discussions of the role our microbiome plays in the autoimmune disease we all share. (For those who are not familiar with the term, microbiome refers to the mix of bacteria in our gut that…Continue

Tags: FMT, microbiota, microbiome

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Latest Activity

Robert Harington updated their profile
54 minutes ago
dac1223 and txangel922 are now friends
3 hours ago
PeregrineFalcon posted a discussion


Hi. New to this group. Thank you for sharing your struggles and successes. I am wondering why my insomnia is so bad the couple days after IVIg. My body is very tired and not well but won't rest. Any thoughts? I am on plenty of meds for sleep so it…See More
7 hours ago
txangel922 replied to txangel922's discussion Spoon Theory and When to make Life changes
"Thanks for responding. I am so sorry to hear you are in limbo and unable to get the help you need. I like you really need to work and need the insurance of course, which my employer provides. I will keep yall posted and I hope that you will get the…"
10 hours ago

This Week On Living With CIDP 


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Waiting for nerve biopsy results.....

Posted by hjhuggy on February 9, 2016 at 3:28pm 1 Comment

We are waiting patiently for my son's results from his nerve biopsy, then hopefully we can start his new medication, trouble is our appointment isn't until the 8th March :-( why does…


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