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Blog Posts

Surprised

Posted by Anne on February 23, 2015 at 1:10pm 0 Comments

Have been to see my neurologist, despite having a tentative diagnosis from a previous physician, he has diagnosised me with Mononeuropathy Multiplex. He restarted my Gabapentin but at a higher dosage. 

I was in Mississippi this past weekend…

Continue

ClinicalTrials.gov Studies

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

CIDP, IVIG, and Skin Cracking?

Started by DazedandConfused in General. Last reply by jobe 3 hours ago. 2 Replies

Hello, Everyone.I was wondering if anyone else shared this problem, and if so, what you have done to either "try" to treat it, or successfully treat it with over-the-counter skin creams, etc?Disclaimer: I am not seeking an "online diagnosis", as…Continue

Tags: CIDP, itching, IVIG, Side, Effects

bad reaction to ivig

Started by Charlie in General. Last reply by springmang yesterday. 2 Replies

My wife tried ivig twice and she had an extremely bad reaction. 105 fever for a week and had to be hospitalized. Dr. Thinks it could be because she also has cystic fibrosis. Too bad because the treatments were helping her. Has anyone else had such a…Continue

am armed

Started by beryl in General. Last reply by surreal on Thursday. 1 Reply

was not suggesting that i have not taken control of my illness at all, have done from the beginning! major research done in all aspects,have plans in place for my future thanks and fully aware of what everything means. Had my cidp since 2011 so had…Continue

day 3

Started by NEWBIECIDP in General. Last reply by Gert yesterday. 4 Replies

hello im starting day 3 today of ivig i had a terrible case of the itches after day one so they changed up the infusion adding more fluids and benadryl iv thats no fun it wiped me out but i woke up this morning a little better than i did after day…Continue

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Latest Activity

jobe replied to DazedandConfused's discussion CIDP, IVIG, and Skin Cracking?
3 hours ago
jobe replied to DazedandConfused's discussion CIDP, IVIG, and Skin Cracking?
"Hi, A few weeks ago I posted something similar albeit way less severe than this. During and after IVIG my face got very dry and scaley. Someone else posted that this happens to their hands (maybe that was you?). I went to my PCP and was prescribed…"
12 hours ago
NEWBIECIDP posted a status
"home and are going to remix the cocktail add steroids change the time to 7 hrs add more saline im holding on as best as i can not giving up"
18 hours ago
NEWBIECIDP posted a status
"day 3 went horrible sorry to say 1 - 10 scale i had a 12 headache chills sweats entire body hurt when i went to dr for day 4 they sent me"
18 hours ago
NEWBIECIDP and surfnsfari are now friends
18 hours ago
Target replied to estaban's discussion What caused CIDP in you?
"I had Lymphoma in April, did chemo until July. Remission. Had back surgery in August. My neuro says Lymphoma or the chemo or both caused CIDP. I have foot drop in right foot can I expect it in both?"
19 hours ago
springmang replied to Charlie's discussion bad reaction to ivig
"That happened to me two ivig's ago and I spent a week in the hospital and no one has any idea why."
yesterday

Moderator
DazedandConfused replied to Charlie's discussion bad reaction to ivig
"Hello, Charlie. Let me be the first to compliment you on the dedication that you show your wife, by seeking out the experiences of others on our humble site! We wish you both all the strength there is! About bad reactions to IVIG, most IVIg products…"
yesterday

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