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Ben Munoz

February 2012 Community Newsletter

Posted by Ben Munoz on February 22, 2012 at 11:26pm 0 Comments

Dear Friends and Family of LivingwithCIDP,

As you well know, living with CIDP can be very challenging not only for you but to your families as well. This organization was built with a…

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mabes

GBS/CIDP Foundation International invites CIDP patients only to a special meeting w/Johns Hopkins Nuerologist

Posted by mabes on February 14, 2012 at 11:59am 0 Comments

 

Topic:  Updates on CIDP help sort out your diagnosis and treatment

Speaker:  Dr. David Cornblath Prof of Neur &Neursurgery  Johns Hopkins Univ Member GBS/CIDP Advisory Board

SATURDAY, MARCH 3, SHERATON AT WESTPORT, ST.…

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Ben Munoz Ben Munoz created this Ning Network.
 

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uncomfortably numb

Stopping Trreatments?

Started by uncomfortably numb in General. Last reply by uncomfortably numb 6 hours ago. 12 Replies

I spoke with my neruo 2 weeks ago after going through several rounds of IVIG over the past year with side effects that he did not feel out weighed the benefits now, and I agree, he wants to stop those.  In the beginnig, the treatments allowed me to…Continue

JonJ

Remedies for Walking and Running Difficulties

Started by JonJ in General. Last reply by Joe D 16 hours ago. 3 Replies

I understand that a large number of you have difficulties with running and walking. About six years ago, I found it increasingly difficult to find shoes that I could comfortably walk in. I have a problem called foot drop which caused my feet to slap…Continue

derek

Alternative medicines

Started by derek in General yesterday. 0 Replies

Hi All, my question today is if anyone has used Phospholipid exchange and if so did it have a positive outcome.Be blessed today.Continue

Jen

Bothersome result of IVIG?

Started by Jen in General. Last reply by Jen yesterday. 8 Replies

About a month after the first round of IVIG in November, I was plagued by a very itchy rash. The general consensus from med people was that the treatment had nothing to do with it. However, am into the 2nd day of IVIG and it has already begun. So…Continue

Latest Activity

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John "JC" Colyer left a comment for Click
Welcome Click, I know you will connect with good people here that will offer you support and information, Stay Strong!
2 hours ago
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John "JC" Colyer left a comment for Aaron Spengler-Johnson
Welcome Aaron, I know you will connect with good people here that will offer you support and information, Stay Strong!
2 hours ago
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Eric D. Kroll left a comment for Aaron Spengler-Johnson
Aaron - welcome!  Great to see you found us.  There are terrific people on here for your support so feel free to reach out.
3 hours ago
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Eric D. Kroll left a comment for Click
So glad you found us.  You are not alone here.  Welcome!
4 hours ago
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uncomfortably numb replied to uncomfortably numb's discussion 'Stopping Trreatments?'
Hi Mabes, yes, I have taken solumed, 1000 at a time, infused, three days in a row, for a total of 3000, and received no benefit from it except to lose my mind close to thirty days.  That was all.  
6 hours ago
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Scott Orn left a comment for Click
Big welcome Click! This is a terrific place!
7 hours ago

Top Discussions 

1 Need all my friends to answer--when are total effects of IVIg felt?

Need all my friends to answer--when are total effects of IVIg felt?

Posted by Doggymama on January 28, 2012

2 Beginning symptoms of CIDP

Beginning symptoms of CIDP

Posted by jh on February 15, 2012

3 Stopping Trreatments?

Stopping Trreatments?

Posted by uncomfortably numb on February 20, 2012

4 NEW SENSATIONS CAN ANYONE RELATE TO THIS

NEW SENSATIONS CAN ANYONE RELATE TO THIS

Posted by Mary on February 7, 2012

5 Breathing

Breathing

Posted by Joe D on February 5, 2012

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