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Blog Posts

Never give up.

Posted by Armando Abrero on April 20, 2014 at 3:08am 0 Comments

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…



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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.


NEW to forum

Started by kidzcounselor in General. Last reply by mabes 4 hours ago. 4 Replies

Hi my name is Katy and I have spent the last year frustrated, and slowly losing my ability to do the the things I love. As of last summer I was still circuit training, running with my 2 kids, working long hours as a counselor and being a wife. Since…Continue

What is the root of the CIDP/GBS problem?

Started by estaban in General. Last reply by bob_kinley 4 hours ago. 2 Replies

My diagnoses:Chronic Inflammatory Demyelinating PolyradiculoneuropathyBut I always see:Chronic Inflammatory Demyelinating PolyneuropathyThe "radiculo" refers to root. My understanding of anatomy is that the "root" is the junction between the spine's…Continue

Tags: root, symmetry, nerve, polyradiculoneuropathy, horn.


Started by Breeze in General. Last reply by Breeze 14 hours ago. 8 Replies

I'm curious about how many CIDP patients deal with fatigue and to what degree.  Continue

New Member (2nd try)

Started by BobF in General. Last reply by BobF yesterday. 2 Replies

Looks like I screwed up the first attempt so here is another try.Hi!  I am a CIDP patient in remission (hopefully permanently).  In the Spring of 2013, my legs started getting weak and then I started to fall down, which put me in the emergency…Continue

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Latest Activity

bob_kinley replied to estaban's discussion What is the root of the CIDP/GBS problem?
"This could be quite a deep questiion. There is much yet to be learned about cidp.  One thought came to me after meeting my neurologist yesterday -  since my  twenties I have had long periods of crippling and…"
4 hours ago
mabes replied to kidzcounselor's discussion NEW to forum
"Katy, I would call your doctor tomorrow and ask for them to put the order in for the tests so you can go it right away.  It is an easy test but it is usually is sent to a specialty lab and takes a while to come back.  Mayo…"
4 hours ago

Michael C Stark replied to estaban's discussion What is the root of the CIDP/GBS problem?
"I think it is just a name and unless there have been some very specific identifying tests then you are probably captured by that "what the doc" knows syndrome. That is what the doc knows so that is what it gets called."
6 hours ago
Robert Martin replied to kidzcounselor's discussion NEW to forum
"After conduction study my primary ran heavy metal test I came back positive for high levels of lead and manganese . To took 4 to6 months of chelation . To get to a high normal. 4 neurologist latter and finally a diagnosis."
8 hours ago
kidzcounselor replied to kidzcounselor's discussion NEW to forum
"I have not. and i also wondered about silicone toxicity from my IUD. I read a lot of cases. Thank you so much."
10 hours ago
mabes replied to kidzcounselor's discussion NEW to forum
"Hi Katy.  Have you had a heavy metals test?  I had both blood and urine because of similar symptoms.  I was diagnosed with cidp only after 30 other tests came back negative.  I know it's a dreadful process.  May 4 is so…"
10 hours ago
kidzcounselor posted a discussion

NEW to forum

Hi my name is Katy and I have spent the last year frustrated, and slowly losing my ability to do the the things I love. As of last summer I was still circuit training, running with my 2 kids, working long hours as a counselor and being a wife. Since…See More
10 hours ago
Breeze replied to Breeze's discussion Fatigue
"I was getting IVIG every four weeks then I had knee replacement which sent the CIDP in high gear. Lost feeling in both legs up to my knees, lost feeling in my hands, pain was intensified feet were on fire and needles. The muscles in the replacement…"
14 hours ago

Try search feature before posting a question

This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!


Myositis - Online Support Group

New member says:

Thank you for the welcome, I’m grateful.”

Myositis - Online Support Group 

Myositis - Online Support Group

New member says:

"Thank you for the welcome! I haven’t been given a formal diagnosis but just found I have an elevated Jo 1 antibody so I guess I have some form go myositis. I’m going to Mayo in May for further evaluation!”

Myositis - Online Support Group

Myositis - Online Support Group

New member says:

Thanks, looking forward to learning more about this condition and how people cope with it.”

Myositis - Online Support Group            

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