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If your family has been affected by CIDP, consider Living With CIDP your second home.
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I just read the post from someone rejected by Dr. Burt's study. My son was accepted, but has so far been rejected by my insurance company to fund his treatment. My son and I got face to face with the appeals committee on Wednesday at 8:30 a.m.…Continue
Ben Munoz & Ben's Friends were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.
"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
Hi all! My neuro recommended I see Dr B in New York. Im making an appointment now. Just wondering what anyone thought or has heard of him.I cant see him saying anything i havent already been told. Is that a poor attitude to have? Im just at my wits…Continue
Hi. I was diagnostic with cidp February 11, I got 3 ivig treatments and I was getting worse and worse, my doctor change my treatment, and yesterday i started with my first plasma exchange,I am doing 5 every other day. Can some one tell how does the…Continue
Ben Munoz and Ben's Friends Patient Communities were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.…Continue
There is an article which starts on the front page of today's NYTimes entitled:"For Runner With M.S., No Pain While Racing, No Feeling at the Finish." According to the NY Times website, it's currently the most emailed article from the website.You…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!