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If your family has been affected by CIDP, consider Living With CIDP your second home.
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My name is Anne and I am newly diagnosed with CIDP (about 8 days now). I have an appointment to see a neurologist the 14th of January. Have been doing a lot of research on line and stumbled across this support group. What a relief to learn…Continue
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
I haven't been feeling well the past couple of weeks and have been suffering with some blistering headaches. Yesterday, a doctor co-worker of mine said he would draw a sed rate on me and it came back at 91. This morning when I got to work, I got…Continue
IVIG treatment did not improve my case of cidp, now my doctor is proposing steroid treatments. I am a type 2 diabetic currently using oral med, glipizide, and an injectable med called Victoza to control my blood sugar. The doctor thought that I…Continue
Newly diagnosed and completely lost. Neurologist wants me to start IVIG treatments but only have medicare ..so the extra 20% is the problem..I think they are trying to work it out for me or have just completely left me on my own. Not sure at this…Continue
I am weaning off prednisone and am finding myself having withdrawal symptoms/side effects including extreme exhaustion. Is there anything I can take to help bring up the energy level? Continue
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This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!