First Time User?

Need a Doctor or Specialist?

 

Advocacy for Patients with Chronic Illness

We are patients living with chronic inflammatory demyelinating polyneuropathy, here for your support.

Birthdays

Birthdays Today

Birthdays Tomorrow

Blog Posts

Not slowing down with CIDP

Posted by mary on May 10, 2012 at 9:14pm 0 Comments

As a father, Howard Rothman fear one thing for his son Michael-…

Continue

When Sickness Strikes the Family – Caring for the Children

Posted by Armando Abrero on May 6, 2012 at 8:05am 0 Comments

When Sickness Strikes the Family–…

Continue

Share Your NCredible Health Hustle with Nick Cannon

Posted by Armando Abrero on May 4, 2012 at 10:30am 0 Comments

Would you like to share the challenges you face while dealing with a rare disease? Artist and TV personality Nick Cannon would like to hear about it.

Sign up on the link below and share your story. …

Continue

High Ridge Park Corporate Center to Host Inaugural Run or Walk with Mike 5k

Posted by Armando Abrero on May 3, 2012 at 3:34am 0 Comments

Check out this event happening in support of CIDP research.

"High Ridge Park Corporate Center will host the inaugural Run or Walk with Mike 5k on Sunday, May 20, 2012 beginning at 8 a.m. This officially-timed and certified 5k will benefit…

Continue

ClinicalTrials.gov Studies

Loading… Loading feed

Events

Community Moderators

Badge

Loading…
 

Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

Forum

Why symptoms come and go

Started by chirpybirdy in General. Last reply by js121499 2 hours ago. 23 Replies

Hi everyone,I am fairly new to this disease. I was diagnosed back in April, 2011. I have been on IVIg now every 21 days for the year. I seem to be doing fairly good as long as I stay on my 21 day therapy. My question is why do symptoms come and go…Continue

Symptoms

Started by Carli in General. Last reply by McCullough 5 hours ago. 1 Reply

I would like to have support from everybody to share their symptoms and disabilities. Even though everybody is different, it would help to hear how people started and either got worse or better.Sometimes I feel so overwhelmed that I don't realize…Continue

Twitter Chat

Started by John "JC" Colyer in General. Last reply by John "JC" Colyer 18 hours ago. 2 Replies

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue

Tags: Chat, Twitter

IVIG Roller coaster

Started by pat in General yesterday. 0 Replies

Fairly new to this often misdiagnosed disease and wondering if anyone else sees the ups & downs much between infusions. I started having symptoms around August of 2011 went to a family doc with what I thought may have been a couple of pulled or…Continue

Latest Activity

js121499 posted a photo
2 hours ago
js121499 and Kimruck40 are now friends
2 hours ago
js121499 replied to chirpybirdy's discussion Why symptoms come and go
"we are dead on for the same symptoms. Do you get any headaches or neck pain. I am actually going to duke in Durham in 2 months to get worked up for a spontaneous cerebral spinal fluid leak. I was so admanat that i had chiari malformation. "
2 hours ago
js121499 replied to chirpybirdy's discussion Why symptoms come and go
"we are dead on for the same symptoms. Do you get any headaches or neck pain. I am actually going to duke in Durham in 2 months to get worked up for a spontaneous cerebral spinal fluid leak. I was so admanat that i had chiari malformation. Jana, i…"
2 hours ago
McCullough replied to Carli's discussion Symptoms
"Hi my name is John.m. The problem I have is I don't have health insurance and I can't get any tests or ive treatments..I take gabapentin and methadone for the pain.thats all they can do.i have pain from my neck all the way to my feet.I…"
5 hours ago

Moderator
John "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat
"We will be posting  tutorial video's to help with twitter, we are planning multiple chats at different for different time zones, an update will be soon."
18 hours ago

Moderator
John "JC" Colyer commented on Ben's Friends Group's group POSITIVE AFFIRMATIONS AND QUOTES
""If it fails, admit it frankly and try another. But above all, try something. — Franklin D. Roosevelt "
19 hours ago

Moderator
John "JC" Colyer gave a gift to MSakkis
19 hours ago

Top Discussions 

1 Bye!

Bye!

Posted by Joe D on April 20, 2012

2 My Neuro said there is nothing more   can do for me

My Neuro said there is nothing more can do for me

Posted by Mary on April 25, 2012

3 What would you do to comfort a sick friend?

What would you do to comfort a sick friend?

Posted by Armando Abrero on May 9, 2012

4 CellCept?? Does anyone have experience with it?

CellCept?? Does anyone have experience with it?

Posted by DocNuclear1954 on April 20, 2012

5 relaple after 12 years

relaple after 12 years

Posted by sherry on April 30, 2012

Blog.Bensfriends.org

Loading… Loading feed

Top News Stories

Loading… Loading feed

Wendy's Life with CIDP

Loading… Loading feed

Best of Ben's Friends

Loading… Loading feed

What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.

 

Member Map

 
 
 

Please Like us on Facebook and follow Bens Friends on Tumblr and Twitter

Follow Me on Pinterest

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons. 
6. Please take all political opinions to the appropriate place on the internet.   

Specific doctor or hospital names in a positive context are welcome.
Thanks for your cooperation.
 

To Support LivingWithCIDP.org, Click an Ad. Or Two.

Advertise With Us

"To Know the Joy of Giving"

Photos

Loading…
  • Add Photos
  • View All

Partners and Awards

Rare Disease Day 2012 Partner
BensFriends.org Patient Community
SavantMD.com Trusted Partner
Patient Power

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service