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Blog Posts


Posted by Ding71 on March 24, 2015 at 1:12pm 0 Comments

Hi!  I was finally diagnosed with CIDP February 2014.  I was put on Prednisone 4 weeks ago and I hate it!  I have Type 2 Diabetes, high blood pressure, sleep apnea and I still have the weak legs, some days are worse than others of course.  So…


ClinicalTrials.gov Studies

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.


Time To See Results When On IVIG

Started by ben in Symptoms. Last reply by ben 21 hours ago. 2 Replies

Hi All: It is great to have such a blog! It is very interesting to read all of the inspiring stories and how hard we are all working to get through this horrible disease.I am currently on my 3rd treatment of IVIG and haven't seen as much improvement…Continue

Tags: IVIG

heart problems & CIDP

Started by laurie in Symptoms yesterday. 0 Replies

My heart glitters terribly and I was diagnosed with bigeminy. This seemed to crop up after a rather difficult side effects from IVIG. Has anyone had the same?Continue

Tags: heart

Getting Sick while on IVIG

Started by dac1223 in Symptoms. Last reply by dac1223 yesterday. 2 Replies

HelloI'm still a new-bee to this; so, hopefully this is not a ridiculous question.I understand that IVIG is thought to suppress an overactive immune response (attacking nerves). It seems that how this all happens isn't greatly understood. While IVIG…Continue

Agent Orange

Started by Yitzi in General. Last reply by Yitzi Mar 25. 3 Replies

Ok I admit it  this post is going to date me.  I was first told I had CIDP by a pain specialist about a year ago,  it was confirmed by an EMG and NCT.   I am now under the care of a Neurologist who has put me through countless blood tests to exclude…Continue

Tags: veteran, va, agent orange

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Latest Activity

WhymsicalOne posted a status
"Hi all.thankful to have found this group about CIDP. I have been reading posts & am encouraged by your courage strength & determination!"
5 hours ago
WhymsicalOne updated their profile
5 hours ago

DazedandConfused left a comment for L_space
"Welcome, Russ, to our supportive CIDP community. There are many people here with deep understanding of what it means to be a CIDP patient and how to deal with the problems that can sometimes arise in our personal and professional lives. Just…"
7 hours ago
Profile IconL_space and Vertigirl joined Living With CIDP - Online Support Group
7 hours ago
adele replied to DazedandConfused's discussion CIDP, IVIG, and Skin Cracking?
"yes, I have this on my palms; I thought my psoriasis had come back...or possibly skin conditions with diabetes and just getting older and drier.  thanks! Adele"
19 hours ago
ben replied to ben's discussion Time To See Results When On IVIG
"My first 4 day treatment was at in Feb with Privigen which didn't go well as I developed hemolysis. My dosage is 0.4 g per ml so about 120g. Therefore, they decided to spread out the 120g over 4 weak period so I just completed technically the…"
21 hours ago

DazedandConfused replied to ben's discussion Time To See Results When On IVIG
"Hi, Ben, and again...welcome! Your question is one that has many answers, and in the end run, the most common response (in peer reviewed research, general CIDP experience, etc..) is this:  "It depends"! While trying to be as…"
22 hours ago
ben posted a discussion

Time To See Results When On IVIG

Hi All: It is great to have such a blog! It is very interesting to read all of the inspiring stories and how hard we are all working to get through this horrible disease.I am currently on my 3rd treatment of IVIG and haven't seen as much improvement…See More
22 hours ago

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