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Posted by Anne on December 19, 2014 at 11:16am 0 Comments

My name is Anne and I am newly diagnosed with CIDP (about 8 days now).  I have an appointment to see a neurologist the 14th of January.  Have been doing a lot of research on line and stumbled across this support group.  What a relief to learn…



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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.


Having a bad day

Started by Sunshine in General. Last reply by estaban 57 minutes ago. 2 Replies

I haven't been feeling well the past couple of weeks and have been suffering with some blistering headaches.  Yesterday, a doctor co-worker of mine said he would draw a sed rate on me and it came back at 91.  This morning when I got to work, I got…Continue

Steroid and diabetes

Started by mikemc in General. Last reply by soccerdad 49 minutes ago. 2 Replies

IVIG treatment did not improve my case of cidp, now my doctor is proposing steroid treatments. I am a type 2 diabetic currently using oral med, glipizide, and an injectable med called Victoza to control my blood sugar. The doctor thought that I…Continue

Completely lost..trying to stay positive!

Started by Peteys Grandma in General. Last reply by Geepster 2 minutes ago. 1 Reply

Newly diagnosed and completely lost.  Neurologist wants me to start IVIG treatments but only have medicare ..so the extra 20% is the problem..I think they are trying to work it out for me or have just completely left me on my own.  Not sure at this…Continue

Prednisone Tapering and Exhaustion

Started by harpa2000 in General. Last reply by john1953 yesterday. 2 Replies

I am weaning off prednisone and am finding myself having withdrawal symptoms/side effects including extreme exhaustion.  Is there anything I can take to help bring up the energy level?  Continue

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Latest Activity

Geepster replied to Peteys Grandma's discussion Completely lost..trying to stay positive!
"That's a lot to take in but you just have to take one thing that you know you can do and do that first, like calling the Dr. Back and asking where you stand with getting your first IVIg. Then take the next step and the next and the next and…"
2 minutes ago
Peteys Grandma's discussion was featured

Completely lost..trying to stay positive!

Newly diagnosed and completely lost.  Neurologist wants me to start IVIG treatments but only have medicare ..so the extra 20% is the problem..I think they are trying to work it out for me or have just completely left me on my own.  Not sure at this…See More
32 minutes ago
estaban replied to Loni Hart's discussion Association between Helicobacter pylori infection and acute inflammatory demyelinating polyradiculoneuropathy
"This is only an abstract, the full article always reveals more about Truth & Consequences. Here is up to date info... and, Merry…"
37 minutes ago
soccerdad replied to mikemc's discussion Steroid and diabetes
"I am new here and starting IVIG on 12/26... I'm curious to see how I respond. I've been a type 1 diabetic for 27 years. Is long time ago I was on a steroid for back pain issues. It elevated my blood sugars drastically and I had to increase…"
49 minutes ago
estaban replied to mikemc's discussion Steroid and diabetes
"I have type 2, but no experience  with steroids, with IvIG, yes. IvIG & diabetes... hard to differentiate, so I may jump to insulin to differentiated in 2015. Is this doctor a neuro or PCP? If PCP, see neuro and a endocrinologist. I am…"
52 minutes ago
estaban replied to Sunshine's discussion Having a bad day
"Mine come flooding back when medical services, neuros, nurses, physicians and other responsible parties read Jabberwocky instead of GBS/CIDP literature. And, I am connived that half of them that do read the CIDP literature understand it as if it…"
57 minutes ago
estaban replied to Mahdis's discussion prednisone or ivig?
"Took me over a year to find any real relief from CIDP symptoms, and still I've not reached a satisfactory treatment that restores me me to my previous SUPERMAN status.  Read more, study more, then tell neuros your story with…"
Chickenunderwear posted a status
"I was 50 years old and training for my 30th marathon. Now I'm 51 and I need a walker to get around my own house and I can't hold a pen."

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