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If your family has been affected by CIDP, consider Living With CIDP your second home.
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I'm wondering when this disease actually began. 2 years after my surgery on my neck I started having pain in my feet and numbness. Then as time went on it moved to my hands. I haven't experienced total paralysis like many of you have…Continue
It has been a year since my last hospitalizatin, and I am very appreciative of that fact! I am on IV steroid treatments with increasingly longer periods between treatments. I had one this week, and I see my doctor in two weeks for a check up and…Continue
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
Hi,I was just diagnosed with Myasthenia Gravis and have to start IVIG treatments as soon as possible.I have called my insurance company and of course they told me I have a 20% coinsurance and $6500max out of pocket. I know the infusion price depends…Continue
Okay, I DO NOT want to post about this, but I can't find answers anywhere else.I am finding that I am having more urinary urgency with smaller and smaller amounts of urine. Could this be related to the CIDP?I am a nurse, and usually have a bladder…Continue
Greetings to all. I hope you had a wonderful Thanksgiving Holiday.As you may read from my profile, I am here because I am a caregiver to my wife, and we are learning to live with this disease. So I will summarize how we got here, and mention some of…Continue
In America, this Thursday is Thanksgiving. We spend the day thinking about what we are grateful for and also eating a lot of turkey and pie. :)I thought it would be fun to start a discussion on what we're all thankful for. I'll get it going:I'm…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Posted by CharlieR on December 2, 2013
Posted by eaetaylor on December 2, 2013
Posted by kristypsmick on September 12, 2013
Posted by curejp on November 7, 2013
Posted by mabes on November 23, 2013
This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to email@example.com.