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Blog Posts

Perforated Septum...

Posted by Roy on September 29, 2014 at 3:02pm 0 Comments

Just wondering if anyone in this group has been diagnosed with having a perforated septum? For years I dealt with sinusitus and on my last visit to see my…



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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.


Another rare disease...

Started by estaban in General yesterday. 0 Replies

What luck I have!Essential thrombocythemiaIncreased blood platelets... a blood cancer, a form of leukemia. And just when I get manageable control of CIDP. Although it may be a reactive result of inflammation, but not necessarily the inflammation…Continue

Tags: blindsided, dumbfounded, disease, cancer

this new drug called rituxan

Started by firecracker in General. Last reply by Mceagle 4 hours ago. 1 Reply

Is any one receiving the new treatment called rituxan,my Dr wants to add this drug along with my ivig treatments but I'm scared of it just because it is a component of chemo.Continue

this new drug called rituxan

Started by firecracker in General yesterday. 0 Replies

Is any one receiving the new treatment called rituxan,my Dr wants to add this drug along with my ivig treatments but I'm scared of it just because it is a component of chemoContinue

Enterovirus and Weakness/Paralysis

Started by Want to Dance Again in General yesterday. 0 Replies

Is anyone else watching the news coming out of Colorado regarding 9 kids with enterovirus in Colorado also developing weakness and paralysis? And now there's one in California.  These symptoms certainly sound a lot like GBS/CIDP. I certainly hope…Continue

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Latest Activity

Jan and firecracker are now friends
1 hour ago
Jan replied to Jan's discussion CIDP, Work and Pain
"Nancy:  I do not have any other conditions.  I had breast cancer 6 years ago. I had surgery and radiation and was then given tamoxafin.  After 9 months of chronic fatigue and then memory loss I was taken off the medication.  I…"
1 hour ago
Mceagle replied to firecracker's discussion this new drug called rituxan
"My comments back on page 8 - August 12."
4 hours ago
Maggie liked akamalaccas's blog post Medical Cannabis
10 hours ago
6900vet updated their profile
15 hours ago
nancy replied to Jan's discussion CIDP, Work and Pain
"My doctor is recommending Rutuxin(?) a type of chemo. It isn't as much for the cidp as the anti-mag and monoclonal paraproteinamia that I also have. I have been on ivig for two and a half years. Do you have another condition with you cidp?…"
16 hours ago
Geeps replied to jakeyspaw's discussion PICC line advice, wisdom or experience?
"Sometimes we sound pushy and like know-it-alls but we are really trying to give you the information you may need to make an informed decision. The more info you have, the more likely you are to participate in your care and challenge the docs…"
17 hours ago
jakeyspaw updated their profile
20 hours ago

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