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Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 9:59am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+

GratitudeThank…
Continue

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.

Forum

Uncertain dx

Started by Peter in General 9 hours ago. 0 Replies

  Hi! I started my first ivig treatment in october. I spent five days at the hospital that time and then I cam back three weeks ago and got another three doses. On wednesday this week I came in for treatment round three. I got double dosage days one…Continue

But will it be read?

Started by estaban in General. Last reply by estaban 19 hours ago. 2 Replies

A great article that covers SO much about IvIgG.http://onlinelibrary.wiley.com/doi/10.1002/mus.24526/pdfIt is encouraging to read that science is working the CIDP/MMM/GBS…Continue

Tags: MG, MMM, Node_of_Ranvier, CIDP

Orthotic devices?

Started by Melisa H in General. Last reply by Melisa H Nov 22. 11 Replies

Hi!I was wondering if anyone would be able to share any experiences with me?My mum has CIDP and has a ankle-foot orthoses (splint) but does not use it. I was wondering if this is common and if you do wear an orthoses what type (insole, splints,…Continue

Tags: CIDP, Orthoses

how long?

Started by yomtov in General. Last reply by angelicangel on Sunday. 11 Replies

they all say it takes time to go into remission my wife has not stood for over 7 months except for a short period of slight arm and leg movement she has been paralyzed from the neck down for over 7 months went off the resperater 4 months ago and 2…Continue

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Latest Activity

Profile Iconsussex-man and laurie joined Living With CIDP - Online Support Group
1 hour ago

Moderator
mdolich left a comment for Amna
"Welcome to our family Amna. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
2 hours ago

Moderator
mdolich left a comment for laurie
"Welcome to our family Laurie. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
2 hours ago
Peter posted a discussion

Uncertain dx

  Hi! I started my first ivig treatment in october. I spent five days at the hospital that time and then I cam back three weeks ago and got another three doses. On wednesday this week I came in for treatment round three. I got double dosage days one…See More
9 hours ago
estaban replied to estaban's discussion But will it be read?
"SEE PAGE 25, CONCLUSION ... more of focus than structural damage (remyelization) Recent studies of the immunology and electrophysiology of CIDP and MMN suggest that much of the morbidity and disability in these conditions is caused by…"
19 hours ago
JonJ replied to estaban's discussion But will it be read?
"I recognized that, for patient on maintenance IVIG therapy, an infusion would not improve neuropathy in only a few days if the mechanism is remyelination.  I came up with my own theory about this, which I expressed in a Living with CIDP message…"
yesterday

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - November 2014 Issue

Just the Stats: Communities: 38 Friends: 44,000+Gratitude. Thank you. Gratzie. Danke. Tak. Gracias.  So many ways to say it and to feel it.It's not only good to hear on the receiving end, but it's good for us to say on the sending end, too.In fact,…See More
Wednesday
David Sanor left a comment for dancermom
"Thanks for the welcome! I'll post my story soon. David"
Wednesday

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