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I lost all reflexes in my arms and legs since I was stricken with CIDP in March 2013
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare neurological disorder that affects peripheral nerves. Symptoms range from weakness to paralysis, mild loss of feeling to total numbness, and no nerve pain to significant nerve pain.
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) disorder is also sometimes called chronic relapsing polyneuropathy, is caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both genders, CIDP is more common in young adults, and in men more so than women. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre syndrome and it is considered the chronic counterpart of that acute disease.
I have just found your group on the web. After what I thought was a pulled muscle in my back last August and rapid decline in health, I was diagnosed with CIDP in January. By this time I had seen 5 doctors and no one was sure what was going on. I…Continue
Hi All,I was just diagnosed this past week with a deep vein thrombosis in my left calf. Since I have no other risk factors, the vascular surgeon has determined that the cause is most likely the IVIG, since blood clots are one of the common risks of…Continue
Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient organization. It's incredible to be recognized by…Continue
I am relatively new to CIDP with a diagnosis in Dec 2013. Started IVIG in early Dec 2013 and have had monthly infusions since then. I think that I get 35 mg (or is it 35 ml) for 5 days every month of Gamunex. The first bout occurred…Continue
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Posted by Cair on July 19, 2014
Posted by Not a kid on May 14, 2014
Added by Heather R on May 31, 2014
Posted by Zacharias Garyfalou on July 20, 2014
Added by akashide on July 19, 2014
This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!