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Uncle Bill
DazedandConfused

Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment. Always seek the advice of your physician or qualified health provider with any questions regarding your health. Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Blog Posts

Against all odds

Posted by Tommo on May 16, 2015 at 1:30pm 10 Comments

Hey,

My name is Tom, I was diagnosed with C.I.D.P in 2007, at the age of 14. I was very much an active member of society, being an avid rugby player and a First Stubbington Scout.  I was always out and about, full of life. I became unwell…

Continue

ClinicalTrials.gov Studies

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Events

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What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. CIDP is also sometimes called chronic relapsing polyneuropathy, caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both sexes, CIDP is more common in young adults and in men. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre Syndrome, and it is considered the chronic counterpart of that acute disease.

Forum

A-CIDP?

Started by BrokenBear in General 16 hours ago. 0 Replies

Hello, I am new to this group - coming over from the GBS support group, which is what I am currently diagnosed as.Right now I am hospitalized for the third time in four months, due to falling from being paralyzed to the waist. But now I don't think…Continue

Stem Cells Harvested From Adipose Tissue

Started by Rev. Mark Matthew in General. Last reply by Rev. Mark Matthew yesterday. 2 Replies

My PCP emailed this website to me. There may be a treatment option here for us so please take a look at the following and post your thoughts/experiences (especially the doc here). Thank you.…Continue

POT In very general sense

Started by estaban in General. Last reply by Madere (dancermom) 18 hours ago. 1 Reply

Marijauna contains cannbiods, which in specific ways, verified by numerous medical authorities, may/will provide relief from peripheral neuropathy. The brain possesses receptor to organic substances found in this plant. The cannbiods in cannibis…Continue

Tags: relief, legal, Washinton, Colorado, pain

MEDICAL MARIJAUNA

Started by estaban in General. Last reply by DazedandConfused on Wednesday. 1 Reply

MEDICAL MARIJAUNAMr. Esteban goes to Washington... State...Which type of cannnabis works best for CIDP? I'm going for two weeks and will sample what I think or hear is the best strains. I am not in this adventure for the high.When I return to Hawaii…Continue

Tags: tarzan, pain, prescription, pot, MARIJAUNA

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Latest Activity

BrokenBear posted a discussion

A-CIDP?

Hello, I am new to this group - coming over from the GBS support group, which is what I am currently diagnosed as.Right now I am hospitalized for the third time in four months, due to falling from being paralyzed to the waist. But now I don't think…See More
16 hours ago

Moderator
mdolich left a comment for BrokenBear
"Welcome to our family BrokenBear. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
16 hours ago

Moderator
Madere (dancermom) left a comment for BrokenBear
"Welcome, BrokenBear, the setup here is pretty much the same as GBS, so feel free to post your discussion. Best wishes!"
16 hours ago
Profile IconBrokenBear, Boot and Elena joined Living With CIDP - Online Support Group
16 hours ago

Moderator
mdolich left a comment for Elena
"Welcome to our family Elena. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
16 hours ago

Moderator
mdolich left a comment for Boot
"Welcome to our family Boot. I'm sure you'll find a lot of great information here. We have a great group of members who are very supportive. Read all the past posts & comments, and ask questions. Start a new discussion to find the…"
16 hours ago

Moderator
Madere (dancermom) replied to estaban's discussion POT In very general sense
"Estaban, the sudden interest from marijuana sellers seeking memberships to this community indicates to me that at present, these discussions are best held in private message rather than the forum. And, as with all medications, your doctor is the…"
18 hours ago

Moderator
DazedandConfused left a comment for Elena
"Elena, Welcome to our supportive CIDP community! You have been through quite a "voyage" since your diagnosis. I know how scary this process can be, and how it changes lives, but just as they change for the worse, so too, can they change…"
yesterday

This Week On Living With CIDP 

1 Against all odds

Against all odds

Added by Tommo on May 16, 2015

2 Exercise and stretching causing relapse?

Exercise and stretching causing relapse?

Posted by Barbara on May 17, 2015

3 Bad muscle pain in shins and calves

Bad muscle pain in shins and calves

Posted by Michael in Chicago on April 26, 2015

4 Swelling in feet and hands

Swelling in feet and hands

Posted by BabyDoll9175 on May 14, 2015

5 MEDICAL MARIJAUNA

MEDICAL MARIJAUNA

Posted by estaban on May 20, 2015

Try search feature before posting a question

This is a place to try to get answers to questions, before posting a question try entering it in search box in upper right and press enter. See if past discussions can answer new questions, try it, thanks!

 
 
 

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