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Uncle Bill

What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. CIDP is also sometimes called chronic relapsing polyneuropathy, caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both sexes, CIDP is more common in young adults and in men. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre Syndrome, and it is considered the chronic counterpart of that acute disease.


Peripheral Sensory Neuropathy

Started by NEWONE in General. Last reply by CanadianAngel 10 hours ago. 5 Replies

I know I have posted on this before, but I don't think I really ever studied it.  Just knew what it was.  Mostly for me I'm sensitive to touch and the areas are actually sore to the touch and get sore from mostly sitting or laying when things hit…Continue

Tags: Neurpathy, GBS, CIDP

YouTube Lecture by Dr. Kenneth Gorson

Started by JonJ in New Articles and Research. Last reply by JonJ on Monday. 3 Replies

FYI, there is a lecture entitled "Managing Your CIDP (Sorting Out Your Diagnosis and Treatment)" recently posted on YouTube. The lecturer is Dr. Kenneth Gorson, who is associated with the CIDP/GBS Center of Excellence at St. Elizabeth's Medical…Continue

Forest Fires and Symptoms

Started by Susanna in Symptoms. Last reply by Jeff_K Aug 27. 1 Reply

Hi...I live in northern Montana where we are having serious fires, and smoke. When the smoke flares up, so do my CIDP symptoms. I feel severe "chills" when I move, write, climb the stairs. Also, find I drop things more, move slowly, and feel much…Continue

still waiting for insurance approval for IVig

Started by Making lemonade in General. Last reply by Kelly Aug 27. 11 Replies

It will be one month from my RX date at the end of the week, and still no approval for my IVig infusions. Anyone know if there is a set time that a Insurance Company has to respond with approval or not. My legs continue to grow weaker. Frustrating…Continue

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Latest Activity

CanadianAngel replied to NEWONE's discussion Peripheral Sensory Neuropathy
"I have the same issue, with soft bumps causing much more pain than they should or, for example, I am itchy, and I scratch it and then the underlying tissue feels bruised for the next 15-30 minutes. I've also had trouble when laying in the sofa:…"
10 hours ago
DogLover is now a member of Living With CIDP - Online Support Group
14 hours ago
Robert Eiferd replied to Robert Eiferd's discussion Attitude Adjustment
"Hi kelly --  I forgot all about that post. Thanks for reminding me. Since that post I have continued working - now I even get to work from home as a reservation agent for United Airlines. My mother-in-law passed away but she was able to attend…"
Kelly replied to Robert Eiferd's discussion Attitude Adjustment
"I realize this post is old but I wanted to thank you for it. Beautifully written and inspiring. I honestly never felt a purpose in my life before getting sick and now that I have been through hell, I appreciate every single day so much more. You are…"
Kelly replied to NEWONE's discussion Peripheral Sensory Neuropathy
"Have you thought of maybe attending a meeting for CIDP/or just chronically ill in your area? As beneficial as this online support group has been for me I can imagine meeting people who know what you're going through could help. I know of some…"
Kelly replied to NEWONE's discussion Peripheral Sensory Neuropathy
"Trying to move every single day is so beneficial to me in terms of maintaining my current abilities as well as reducing the spot pains from sitting or laying. Even if I sleep in the same position for too long I will wake up incredibly sore and…"
lindylou is now a member of Living With CIDP - Online Support Group
NEWONE replied to NEWONE's discussion Peripheral Sensory Neuropathy
"Thanks for replying Robert.  Not many people seem to know about the peripheral sensory neuropathy.  I just had a visit with my neurologist and was tested for lyme disease also.  He doubt that this is the problem but thought he would…"

This Week On Living With CIDP 

1 Peripheral  Sensory Neuropathy

Peripheral Sensory Neuropathy

Posted by NEWONE on August 29, 2015

2 What I wish people understood

What I wish people understood

Posted by DocMac on November 5, 2012

3 sorry just venting , not really a discussion

sorry just venting , not really a discussion

Posted by thunderpaws on August 2, 2015

4 Attitude Adjustment

Attitude Adjustment

Posted by Robert Eiferd on February 1, 2013

5 YouTube Lecture by Dr. Kenneth Gorson

YouTube Lecture by Dr. Kenneth Gorson

Posted by JonJ on August 26, 2015


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Posted by CowBoyMike on July 28, 2015 at 2:55pm 4 Comments

going in for a round of IVIG 5 days at the hospital i get terrible migraines i get hydrated like they tell us to,i take a pile of meds but i still get thumpin headaches for a week.


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