LivingWithCIDP - Online Support Group
Patient-to-patient support for people living with CIDP.
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We are patients living with chronic inflammatory demyelinating polyneuropathy, here for your support.
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When Sickness Strikes the Family – Caring for the Children
Posted by Armando Abrero on May 6, 2012 at 8:05am 0 Comments 0 Likes
When Sickness Strikes the Family–…
Continue Share Your NCredible Health Hustle with Nick Cannon
Posted by Armando Abrero on May 4, 2012 at 10:30am 0 Comments 0 Likes
Would you like to share the challenges you face while dealing with a rare disease? Artist and TV personality Nick Cannon would like to hear about it.
Sign up on the link below and share your story. …
Continue High Ridge Park Corporate Center to Host Inaugural Run or Walk with Mike 5k
Posted by Armando Abrero on May 3, 2012 at 3:34am 0 Comments 0 Likes
Check out this event happening in support of CIDP research.
"High Ridge Park Corporate Center will host the inaugural Run or Walk with Mike 5k on Sunday, May 20, 2012 beginning at 8 a.m. This officially-timed and certified 5k will benefit…
ContinueClinicalTrials.gov Studies
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Forum
Why symptoms come and go
Started by chirpybirdy in General. Last reply by js121499 2 hours ago. 23 Replies 0 Likes
Hi everyone,I am fairly new to this disease. I was diagnosed back in April, 2011. I have been on IVIg now every 21 days for the year. I seem to be doing fairly good as long as I stay on my 21 day therapy. My question is why do symptoms come and go…Continue
Symptoms
Started by Carli in General. Last reply by McCullough 5 hours ago. 1 Reply 0 Likes
I would like to have support from everybody to share their symptoms and disabilities. Even though everybody is different, it would help to hear how people started and either got worse or better.Sometimes I feel so overwhelmed that I don't realize…Continue
Twitter Chat
Started by John "JC" Colyer in General. Last reply by John "JC" Colyer 18 hours ago. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
IVIG Roller coaster
Started by pat in General yesterday. 0 Replies 0 Likes
Fairly new to this often misdiagnosed disease and wondering if anyone else sees the ups & downs much between infusions. I started having symptoms around August of 2011 went to a family doc with what I thought may have been a couple of pulled or…Continue
Latest Activity
js121499 replied to chirpybirdy's discussion Why symptoms come and gojs121499 replied to chirpybirdy's discussion Why symptoms come and goMcCullough replied to Carli's discussion Symptoms
ModeratorJohn "JC" Colyer replied to John "JC" Colyer's discussion Twitter Chat
ModeratorJohn "JC" Colyer commented on Ben's Friends Group's group POSITIVE AFFIRMATIONS AND QUOTES
Top Discussions
| 1 |
Bye!Posted by Joe D on April 20, 2012 |
| 2 |
My Neuro said there is nothing more can do for mePosted by Mary on April 25, 2012 |
| 3 |
What would you do to comfort a sick friend?Posted by Armando Abrero on May 9, 2012 |
| 4 |
CellCept?? Does anyone have experience with it?Posted by DocNuclear1954 on April 20, 2012 |
| 5 |
relaple after 12 yearsPosted by sherry on April 30, 2012 |
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