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Uncle Bill

What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. CIDP is also sometimes called chronic relapsing polyneuropathy, caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both sexes, CIDP is more common in young adults and in men. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre Syndrome, and it is considered the chronic counterpart of that acute disease.


Have your doctors ever tried to replace your IVig-infusions with Subcutaneous Ivig?

Started by Rachelsdaughter in General. Last reply by Kelly Nov 16. 1 Reply

Hi!I'm 25 years old and I was diagnosed one year ago, after having experienced a very acute-onset of what is now diagnosed as "sub-acute CIDP". I've been receiving Ivig-infusions for a year and I've made some great progress (I've gone from being in…Continue

Medicare and IVIG

Started by Spelcheker in General. Last reply by Spelcheker Nov 21. 3 Replies

I currently have private insurance through my wife's employer. I am considering switching to Medicare part B (I already have part A), to help save money. Our private insurance is costing us so much money each month that I need to find a better…Continue

Our stories are important. Please share yours!

Started by ModSupport in General. Last reply by Charlotte Newby Nov 21. 5 Replies

Ben's Friends is made possible by generous donors who help pay for the costs of maintaining our network. They share with us, and we would like to share your story with them. Post what Ben's Friends has meant to you!In your post, we'd love to hear a…Continue

Regarding brain lesions

Started by Deedee in General. Last reply by Deedee Nov 4. 3 Replies

Are brain lesions a part of CIDP? Or do I also have MS?DeedeeContinue

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Latest Activity

CanadianGirl left a comment for homer
"Hi homer, I'm glad you found us.  CIDP Survivors is a group of patients and caregivers sharing their knowledge and stories.  If you have any specific questions, I would suggest checking out the discussion board, and even starting your…"
3 hours ago
Profile Iconhomer, LisaM and Naftali joined Living With CIDP - Online Support Group
4 hours ago
JanD replied to old joe's discussion Headaches following infusion question.
"Dear Tingle, I will let you know for sure.  I'll see him in January.  I always take my husband along for his memory.  I'll have him memorize it:) JanD"
12 hours ago
Nicole updated their profile
14 hours ago

This Week On Living With CIDP 

1 New to CIDP...and this forum.

New to CIDP...and this forum.

Posted by skosbu on April 30, 2015

2 Headaches following infusion question.

Headaches following infusion question.

Posted by old joe on October 31, 2015


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Medicare and IVIG

Posted by Spelcheker on November 14, 2015 at 1:48pm 0 Comments

I currently have private insurance through my wife's employer. I am considering switching to Medicare part B (I already have part A), to help save money. Our private insurance is costing us so much money each month that I need to find a better…


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