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Uncle Bill

What is Chronic Inflammatory Demyelinating Polyneuropathy?

Chronic Inflammatory Demyelinating Polyneuropathy  (CIDP) is a rare neurological disorder that affects peripheral nerves. CIDP is also sometimes called chronic relapsing polyneuropathy, caused by damage to the myelin sheath (the fatty covering that wraps around and protects nerve fibers) of the peripheral nerves. Although it can occur at any age and in both sexes, CIDP is more common in young adults and in men. It often presents with symptoms that include tingling or numbness (beginning in the toes and fingers), weakness of the arms and legs, loss of deep tendon reflexes (areflexia), fatigue, and abnormal sensations. CIDP is closely related to Guillain-Barre Syndrome, and it is considered the chronic counterpart of that acute disease.


CIDP and Lithium

Started by Sadieheidi in Symptoms on Tuesday. 0 Replies

Before I was diagnosed my doctor was not certain if the drug , Lithium...may have caused the CIDP...in other words Lithium induced CIDP. I was taken off the lithium but symptoms did not improve. Any one else been in this situation? The nerve…Continue

IVIG and will it relieve CIDP symptoms

Started by Sadieheidi in Symptoms. Last reply by Love2SqD yesterday. 2 Replies

I am a newbie here and this is my first post. What I am hoping to get answers to is whether the IVIG therapy will restore the numbness I have in my feet and toes and the pins and needles sensations. Also I experience very bad muscle spasms in my…Continue

Medicare supliment

Started by Robert Martin in General on Tuesday. 0 Replies

Who has found the best Medicare supliment for IVIG ? I am new to Medicare .

Stopping IVIg

Started by pastordeb in General. Last reply by Mashrub on Tuesday. 5 Replies

I have been taking IVIg for five years and just started having bad reactions.  The last time ,about two months ago, I ended up in the ER and now afraid to go back.  Has anyone stopped their IVIg treatments and what has happened?Continue

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Latest Activity

Linda Meyer replied to Rose48's discussion Leg cramps
"Rose48, I use tramadol for leg cramps.  I had to start out at a very low dosage and build up, but it worked for me.  I take 2 .50mgs per day and have not had a cramp or spasm in 3 years and have not had to increase the dosage. I sympathize…"
2 hours ago
Kelly replied to Rose48's discussion Leg cramps
"Exercise, magnesium, lots of electrolytes (gatorade mainly), bananas, tons of water! My doctor also recommended tonic water for the quanine. "
5 hours ago
Maureen replied to Rose48's discussion Leg cramps
"I don't take Prevacid daily but because of the constant nausea and abdominal cramping I live on Tums.  Prisolec is a proton pump inhibitor which is the one thing Dr. Patterson recommended even though I did not ask her advice on my stomach…"
10 hours ago
ninny1 replied to DocMac's discussion What I wish people understood
"  When I was first diagnosed, nobody could understand what the problem was. I looked fine and healthy, apart from the odd stumble, numbness and feeling like I was trying to walk in treacle! About fourteen years down the line it is now evident…"
15 hours ago
ninny1 replied to DocMac's discussion What I wish people understood
" "
15 hours ago
positive outlook replied to Rose48's discussion Leg cramps
"If you live in Staten Island and are willing to go to Manhattan, there are two places.  There is the peripheral neuropathy center at Cornell and another center at columbia Presbyterian Medical center. You may find the former more friendly and…"
Rev. Mark Matthew replied to Rose48's discussion Leg cramps
"Dear Maureen, Surprise me... Hope is miles removed from both pessimism and optimism. Hope deals with reality. And reality is surprising. If it’s surprising, it’s real. If it isn’t surprising, it isn’t real. Hope is openness…"
Maureen replied to Rose48's discussion Leg cramps
"I appreciate your kind thoughts but they are completely useless advice. Going to the ER is a fool's game and the hours you spend there are wasted money for both you and your insurance unless you have an obvious cut that needs to be stitched…"

This Week On Living With CIDP 

1 Stopping IVIg

Stopping IVIg

Posted by pastordeb on July 27, 2015

2 Leg cramps

Leg cramps

Posted by Rose48 on June 4, 2015

3 immune boosters

immune boosters

Posted by kraai on July 24, 2015

4 IVIG and will it relieve CIDP symptoms

IVIG and will it relieve CIDP symptoms

Posted by Sadieheidi on July 28, 2015

5 Can't deal with all the "miracle cures"......

Can't deal with all the "miracle cures"......

Posted by Maggie on July 21, 2015


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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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Posted by CowBoyMike on July 28, 2015 at 2:55pm 0 Comments

going in for a round of IVIG 5 days at the hospital i get terrible migraines i get hydrated like they tell us to,i take a pile of meds but i still get thumpin headaches for a week.


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